Showing posts with label stroke. Show all posts
Showing posts with label stroke. Show all posts

Saturday, February 19, 2022

National Aphasia Synergy Inc


About National Aphasia Synergy*

National Aphasia Synergy (NAS) is a new nonprofit organization that promotes an aphasia community led by peers. 

 

Synergy organization was founded by and will be guided by people with aphasia (PWA). This is life participation at its core!

Aphasia is a language disorder and can affect speaking, reading, writing, and understanding. Judgement and intelligence are intact. The most common cause of aphasia is stroke or other brain injury. 

There are over 2 million people in the United States living with aphasia. That’s more than twice as many as those living with Parkinson’s disease and 60 times more than ALS, but less than 14% of the general population knows what aphasia is - until it happens to them or a loved one.

“Aphasia is a tough blow. It interferes with communication, social connection, psychological well-being.”  (Katarina Haley, PhD, CCC-SLP, UNC Chapel Hill)

Aphasia affects a large part of the population, and the incidence of depression after aphasia is estimated to be 60% over the first year. Sadly, support for aphasia has been very thin.

NAS was developed to help support people with aphasia. We can best serve those with similar needs by networking local aphasia groups and individuals with aphasia in order to share ideas, resources, and support in a central place. NAS website will be available to aphasia groups across the country as well as individuals. Our strength is sharing the stories of wins and challenges. 

 

NAS Mission Statement 

 

NAS is a peer-led community of people with aphasia driven to: 

•  educate people with aphasia (PWA) 

•  empower PWA to use technology to improve communication skills 

• promote peer-befriending with new or struggling PWA 

•  develop a national PWA community 

•  encourage optimism and a positive outlook in PWA 

 

NAS Vision Statement

Our vision is that one day, the population of the United States will have a greater understanding of aphasia, and as a result, all people with aphasia will be treated with respect and kindness.


NAS will be a national community serving people with aphasia to end the isolation.

Our website is intended to be a rich source for people with aphasia. 

Our plan is for people with aphasia to help other people with aphasia thrive. 

The Synergy organization will offer PWA:

• strategies

• tips and tools

• information and support for hobbies, volunteer opportunities, or jobs

• book and article resources, including works authored by people with aphasia

• stories about people with aphasia and an opportunity to share stories

• discussions and chats

• resources for people with aphasia

• links to newspapers and other media across the nation

We need you to help us grow. Every little bit will help us to provide a strong online presence for the aphasia community. We need your help to make our vision a reality. 

National Aphasia Synergy Inc is a 501(c)(3) tax exempt organization with a Tax ID of 87-3330394. Contributions are tax deductible to the extent allowed by law and do not represent payment for goods or services received. 

 

NAS Board of Directors

• Trish Hambridge (PWA) – President - Apple - Dunedin, Florida 

• Amy Walters (PWA) – V.P. – Regulatory & Clinical Affairs - Newport Beach, California 

• Helen Ansted – Secretary/Treasurer – Finance - San Jose, California 

• Kait Moses M.A., CCC-SLP - U of Michigan Aphasia Program – Plymouth, Michigan

• Bruce Farrell (PWA) - Director of Proposals for Plante Moran – Detroit, Michigan



* Donation - Download and mail our form: here





Thursday, October 23, 2014

Act FAST - Call 911 immediately

Think someone might be having a stroke?  Call 911 immediately!!

Act FAST to recognize someone suffering stroke symptoms.





Paramedics came recently to our Young Adults Stroke Survivors meeting. They gave these important tips.  If you think you or someone you know is having a stroke:

Don't drive yourself to the hospital! You could have an accident! Call 9-1-1 immediately. The paramedics will call the hospital to let them know that a storke patient is coming, and it is easier and more efficient for hospital personnel to receive a patient from an ambulance rather than a car.  You'll get your care quicker when you are transported in an ambulance.

Most hospitals in the Silicon Valley are Certified Stroke Centers. You'll be in in good hands.

The paramedics also reminded us to have an emergency contact on your phone. Label it "ICE", which stands for "In Case of Emergency." Emergency personnel know to look for that on cell phones.

It's also a good idea to get an app that can store your medical information.  The newest iPhone operating system has a new "Health" app which has a place for medical information, called Medical ID. The Medical ID can be accessed from the emergency dialer without unlocking your phone.  Below is a screenshot of my Medical ID information.





It is also a good idea for everyone to have emergency contact information that emergency personnel can find:
  • Post Contacts and medical condition  on the refrigerator. Paramedics know to look there for emergency information.
  • Get a emergency call system, such as Alert One.  Find it  here.
  • Wear a medical I.D. necklace with important information.

Saturday, February 1, 2014

Stroke Survivor Strategies Strategies Business Card

How to help with stroke

What is a stroke?  here

Download National Stroke Association's STROKE 101 Fact Sheet for more information.

National Stroke Assoc Recovery - here

American Heart's Finding Support:  You Are Not Alone - here

Key questions to ask your doctor if you had a stroke - here

American Stroke Association's Nutrition Tips for Stroke Survivors - here
National Stroke Association's Healthy Eating - here


How to help with Aphasia - here

Video on Neuroplasticity - here

Stroke Story video - here

How to use adaptive equipment in bathroom video - here

Trish's posts:
  • Acupuncture video -here 
  • Strategy Games - here
  • Right splint video - here
  • Calendar to organize meals and other help for families during a time of stroke - here

Wednesday, January 29, 2014

How to help with Aphasia

How to communicate with someone with Aphasia

  • Aphasia Center of California (Dr. Roberta Elman) interview for Comcast Newsmakers video

         

  • "I have aphasia" letter is here

  • Top 10 tip for talking with people with people:

  • Certain things that can help if you are talking to someone with aphasia by The Speech Therapy Centre - here
  • Printable communication boards for adults with aphasia - here


Aphasia Simulation - here

Strategy Games - here

How to help with stroke - here


Aphasia websites:
  • National Aphasia Association - here
  • Voice of Hope for Aphasia - here

Aphasia videos:
  • What is a stroke?

  • 7 Steps to Stroke Recovery




  • A short educational video for children about aphasia following stroke.

Sunday, March 31, 2013

Reusable produce bags

It is difficult to use the plastic produce bags in the grocery store, so I found some small cotton draw-string bags. I can easily shop for produce with one hand.  Not only are the bags easy to use, they are re-useable and environmentally friendly. They come in different sizes. Find them at Amazon.

Friday, November 2, 2012

RealTime Health - Stroke in Midlife (USA) Words of wisdom

"RealTime Health Stroke" app for free, where you can:

• View the full Stroke in Midlife USA program
• Share your own ideas and experi
ences
• Answer health-related questions
• Get the latest news and information about stroke
• Find local support groups and programs


"Stroke" Apps is here
RealTime Health website is here


That's me...


Intro to RealTime Health mobile app